Columns, My Darling Disability - a Column by Kendall Harvey Navigating Curious Kids and Friedreich’s Ataxia

News Oral Glucose Tolerance Test Better at Diagnosing Friedreich Ataxia-Associated Diabetes, Study Suggests

Columns, Little Victories - a Column by Matthew Lafleur Finding Friends, Family, and Vulnerability at rideATAXIA Dallas

Columns, No Good Excuse - a Column by Sean Baumstark Accountability Can Change Everything

Columns, Fighting FA - a Column by Frankie Perazzola To Pursue My Love of Cooking, I’ve Made Some Adjustments with FA

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Celebrate Your Victories, No Matter How Small

News Patients in Short Study Report No Differences Between Idebenone Treatment and Placebo

Columns, Little Victories - a Column by Matthew Lafleur Because Saying ‘No, I Won’t’ Just Isn’t My Style

Columns, No Good Excuse - a Column by Sean Baumstark It Starts with Responsibility

Columns, Fighting FA - a Column by Frankie Perazzola I’m Trying a Different Approach to Fitness

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Thankful to Get Expert FA Care for My Checkup

News StrideBio, Takeda Pair to Develop New Gene Therapies for Friedreich’s Ataxia

Columns, Little Victories - a Column by Matthew Lafleur Waiting to Meet My New Service Dog

Columns, No Good Excuse - a Column by Sean Baumstark Why I Don’t Wait for the Right Time Anymore

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Accepting Wheelchair Use for a Comfortable Day at the Museum

Columns, My Darling Disability - a Column by Kendall Harvey Austin Knows How to Treat People with Disabilities

News Iron-binding Molecules Could Protect FA Patients from UVA Damage to Cells, Study Suggests

Columns, Little Victories - a Column by Matthew Lafleur Consistency in the French Quarter with FA

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Mom’s Care and a Little Planning Made for a Fun St. Paddy’s Eve

News New Platform Enables Collaborative Data Sharing to Develop Therapies for Friedreich’s Ataxia

Columns, Little Victories - a Column by Matthew Lafleur Death, My Constant Companion

Columns, No Good Excuse - a Column by Sean Baumstark Introducing ‘No Good Excuse,’ a New Friedreich’s Ataxia Column

Columns, Fighting FA - a Column by Frankie Perazzola Why I Believe Adaptive Fitness Is Important

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns How I Stay Active in Each Season of the Year

News Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

News Phase 2 Trial of Potential Oral Therapy, MIN-102, Starting in Spain

Columns, Little Victories - a Column by Matthew Lafleur Decompressing from Life’s Complexities on a Lazy Sunday

News Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

Columns, Fighting FA - a Column by Frankie Perazzola Using Both a Walker and a Wheelchair

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns How to Plan a Grassroots FA Event

Columns, My Darling Disability - a Column by Kendall Harvey What Fundraising Means to Me

News NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

Columns, Little Victories - a Column by Matthew Lafleur I’ve Learned to Face My Reality While Hoping for an FA Cure

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Alone We Are Rare, but Together We Are Strong

Columns, My Darling Disability - a Column by Kendall Harvey Becoming Dependent Restored My Independence 

News WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

Columns, Little Victories - a Column by Matthew Lafleur An FAer’s Reflection on Rare Disease Day

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Managing Fatigue in the Workplace

Columns, My Darling Disability - a Column by Kendall Harvey Respecting My Body Despite Friedreich’s Ataxia

News Vienna to Host RARE2019 Meeting on Rare Diseases

News ONEVoice Offers Solutions for Patients with Neuromuscular Disorders

Columns, Little Victories - a Column by Matthew Lafleur I’m Both an FA Patient and a Cajun During Mardi Gras

Columns, Fighting FA - a Column by Frankie Perazzola To the Parents of Children with FA: I Commend You

Columns, My Darling Disability - a Column by Kendall Harvey The Hopes and Risks of Starting a Friedreich’s Ataxia Clinical Trial

News Iron-induced Cell Death May Play Key Role in FA, Study Suggests

News Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

Columns, Little Victories - a Column by Matthew Lafleur The Anchor on My Wheelchair from My Steadfast FA Friend

Columns, Fighting FA - a Column by Frankie Perazzola When in Doubt About Social Media Content, Just Be Honest

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns The Power Behind the FARA Patient Registry

News Neurocrine, Voyager Collaborating on VY-FXN01 Gene Therapy for Friedreich’s Ataxia

Columns, My Darling Disability - a Column by Kendall Harvey When Life Hands You Lemons

Columns, Little Victories - a Column by Matthew Lafleur In the Waiting Room with FA

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns The Cure to Being Burdened by Shopping for Food

News FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases

News Omaveloxolone Safe, Improves Neurological Function in FA Patients, Phase 2 Trial Shows

Columns, Little Victories - a Column by Matthew Lafleur Sometimes FA Makes Me Want to Be Invisible

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Don’t Miss the Chance to Share Your FA Story

Columns, My Darling Disability - a Column by Kendall Harvey Similarities in Parenting and Friedreich’s Ataxia

News HIV Treatment Etravirine is a Potential Therapy for Friedreich’s Ataxia, Study Suggests

Columns, Little Victories - a Column by Matthew Lafleur I’m Right Where I’m Supposed to Be

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Advocacy Is a Powerful Thing

Columns, My Darling Disability - a Column by Kendall Harvey A Friedreich’s Ataxia Explainer

News Restoring Protein’s Levels May Correct Frataxin Deficiency and Mitochondrial Changes in FA, Study Suggests

Columns, Little Victories - a Column by Matthew Lafleur Introducing the Friedreich’s Ataxia News Forums

Columns, Fighting FA - a Column by Frankie Perazzola Accessibility at the Los Angeles Memorial Coliseum: Thank You, LA Rams

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Setting a New Trend with Adaptive Wear

News Generalized Abnormalities Seen in Both Right and Left Ventricles of FA Patients, Study Finds

Columns, Little Victories - a Column by Matthew Lafleur ‘Bird Box’ Is Worth the Hype, Especially for the Disabled

Columns, Fighting FA - a Column by Frankie Perazzola New Year, Same Me. Just a Little Bit Better

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns New Year, New Beginnings

News Correcting Just Half the Heart Muscle Cells Fully Restores Cardiac Function in Friedreich’s Ataxia Mice

Columns, Little Victories - a Column by Matthew Lafleur A New Year’s Resolution I Can Keep

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns The Calm Before the Storm

News Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

News HDAC Inhibitors Can Partially Reverse Genetic Signature Linked to FA, Study Shows

Columns, Little Victories - a Column by Matthew Lafleur A Little Gift from ‘Little Victories’

Columns, Fighting FA - a Column by Frankie Perazzola What the Gratitude Relay Means to the FA Community

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns How I Decreased Fatigue, Part 2: Oiling Away the Pain

News Large Interruptions in GAA Repeats are Rare Among FA Patients, Study Finds

Columns, Little Victories - a Column by Matthew Lafleur Surviving the In-between Moments

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns How I Decreased Fatigue, Part 1: A Bed Fit for a Queen

Columns, My Darling Disability - a Column by Kendall Harvey How Friedreich’s Ataxia Redefined My Faith

News Depression and Its Symptoms Can Be Severe in Friedreich’s Ataxia Patients, Study Says

Columns, Little Victories - a Column by Matthew Lafleur Introversion as an Excuse

Columns, Fighting FA - a Column by Frankie Perazzola I Apologize for Going Dark

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns General Admission Tickets Can Be a Gamble for People with FA

Columns, My Darling Disability - a Column by Kendall Harvey A Physical Therapist Shares Her Perspective on Working with FA Patients

News Inhibition of FAST-1 Molecule May Have Therapeutic Potential in Friedreich’s Ataxia, Study Confirms

Columns, Little Victories - a Column by Matthew Lafleur Finding Reasons to Stay Alive

Columns, Little Victories - a Column by Matthew Lafleur I’m Burning but Not Burnt

News 3 Blood Biomarkers May Be Used to Monitor Friedreich’s Ataxia Status, Study Suggests

Columns, Fighting FA - a Column by Frankie Perazzola Answering the Questions Friends Ask Most Often About My Friedreich’s Ataxia

News US Midterm Election Results Bode Well for Healthcare Policy, Rare Disease Advocates Say

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns 4 Tips for Preparing to Attend a Football Game

Columns, My Darling Disability - a Column by Kendall Harvey My Journey to a Friedreich’s Ataxia Diagnosis, Part 3

News FA Patients’ Lack of Skin Nerve Fibers Made Worse by Larger FXN Defects, Study Reports

Columns, Little Victories - a Column by Matthew Lafleur Where the Heck Is Matt?

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Find a Workplace that Treats Your Disabilities with Dignity

Columns, My Darling Disability - a Column by Kendall Harvey My Journey to a Friedreich’s Ataxia Diagnosis, Part 2

Columns, Little Victories - a Column by Matthew Lafleur Vacation Endings and Beginnings