News 3 Blood Biomarkers May Be Used to Monitor Friedreich’s Ataxia Status, Study Suggests

Columns, Fighting FA - a Column by Frankie Perazzola Answering the Questions Friends Ask Most Often About My Friedreich’s Ataxia

News US Midterm Election Results Bode Well for Healthcare Policy, Rare Disease Advocates Say

A Practical Guide to Life with FA - a Column by Christina Logan, Columns 4 Tips for Preparing to Attend a Football Game

Columns, My Darling Disability - a Column by Kendall Harvey My Journey to a Friedreich’s Ataxia Diagnosis, Part 3

News FA Patients’ Lack of Skin Nerve Fibers Made Worse by Larger FXN Defects, Study Reports

Columns, Little Victories - a Column by Matthew Lafleur Where the Heck Is Matt?

A Practical Guide to Life with FA - a Column by Christina Logan, Columns Find a Workplace that Treats Your Disabilities with Dignity

Columns, My Darling Disability - a Column by Kendall Harvey My Journey to a Friedreich’s Ataxia Diagnosis, Part 2

Columns, Little Victories - a Column by Matthew Lafleur Vacation Endings and Beginnings

News Iron Chelators May Aid the Heart But Don’t Seem to Help Neurological Problems, Study Shows

Columns, Fighting FA - a Column by Frankie Perazzola 10 Lessons I’ve Learned from Having FA

A Practical Guide to Life with FA - a Column by Christina Logan, Columns Don’t Let Fear of Missing Out Spoil Your Trip

Columns, My Darling Disability - a Column by Kendall Harvey My Journey to a Friedreich’s Ataxia Diagnosis, Part 1

News Vibration Device Fails to Halt Motor Deterioration in Children with Friedreich’s Ataxia, Small Study Shows

Columns, Little Victories - a Column by Matthew Lafleur The Caribbean Was the Perfect Spot to Set Aside My Fierce Independence

News #NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News Vitamin E Can Help Restore Irregular Calcium Balance in Cell Models of Friedreich’s Ataxia, Study Suggests

Columns, Little Victories - a Column by Matthew Lafleur Sunny Days on Vacation with My Nephew Jace

News Damage to Spinal Cord, Brain in Children Suggests FA Is Not Strictly Neurodegenerative, Researchers Say

Columns, Fighting FA - a Column by Frankie Perazzola Becoming Involved in the FA Community Was the Best Decision I’ve Made

A Practical Guide to Life with FA - a Column by Christina Logan, Columns Never Fear Putting Yourself Out There

Columns, My Darling Disability - a Column by Kendall Harvey I’ve Adopted the Concept of ‘Besides FA’

News Noninvasive Evaluation of Eye’s Nerve Structures Can Help Predict Neurological Damage in FA, Study Finds

Columns, Little Victories - a Column by Matthew Lafleur The Mother of Vacation Origins

News Serious Games Can Be Used to Assess Motor Function in Advanced FA Patients, Study Shows

A Practical Guide to Life with FA - a Column by Christina Logan, Columns How Friedreich’s Ataxia Brought Me Closer to My Faith

News Fly Study Identifies Two Medications That May Be Cardioprotective for FA Patients

Columns, Little Victories - a Column by Matthew Lafleur Reflections on My Vacation to Turks and Caicos: Traveling Ain’t So Easy Anymore, Thanks to FA

News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

A Practical Guide to Life with FA - a Column by Christina Logan, Columns 6 Tips to Prepare for rideATAXIA, the Big Bike Ride

Columns, Little Victories - a Column by Matthew Lafleur Learning to Live in the Present

A Practical Guide to Life with FA - a Column by Christina Logan, Columns Before Dining Out, We Do Our Research

Columns, My Darling Disability - a Column by Kendall Harvey New to Friedreich’s Ataxia?

Columns, Little Victories - a Column by Matthew Lafleur The Algebra of Dating with FA: The Ex and the Why

Columns, Fighting FA - a Column by Frankie Perazzola A Letter to My Endlessly Loving Mother

News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

A Practical Guide to Life with FA - a Column by Christina Logan, Columns Walk a Mile in an FAer’s Shoes

News Iron Deregulation a Complex Consequence of Faulty Frataxin in Friedreich’s Ataxia, Review Study Says

Columns, My Darling Disability - a Column by Kendall Harvey I’m Not Yet Sure How to Fight My Fatigue

Columns, Little Victories - a Column by Matthew Lafleur Daydreaming and Other Ways of Coping

Columns, Fighting FA - a Column by Frankie Perazzola In Case of Emergency, Don’t Have a Disability

A Practical Guide to Life with FA - a Column by Christina Logan, Columns Don’t Judge Yourself for Needing Help

Columns, My Darling Disability - a Column by Kendall Harvey Seasons of Life with Friedreich’s Ataxia

News Comprehensive MRI-based Study Reveals Brain Changes Linked to Friedreich’s Ataxia

Columns, Little Victories - a Column by Matthew Lafleur FA Progression and Childhood Spies

News Gene Therapy Approach in Early Tests Shows Potential to Raise Frataxin Protein Levels in Cells

Columns, My Darling Disability - a Column by Kendall Harvey The Emotional Workout of Physical Therapy

News Reduced Sweat in Patients May Be Biomarker of Friedreich’s Ataxia, Study Suggests

News Case Report Describes Early FA Onset in Boy with Rare Gene Mutation

A Practical Guide to Life with FA - a Column by Christina Logan, Columns Tips for Traveling with Friedreich’s Ataxia

Columns, My Darling Disability - a Column by Kendall Harvey My Big (Literal) Break

News Researchers Report Rare Case of Friedreich’s Ataxia with Retained Reflexes

Columns, Little Victories - a Column by Matthew Lafleur I’m Still Pedaling to Keep My Oath

News GAITRite Walkway System Is Seen as Reliable Assessment Tool in Young FA Patients, Study Reports

A Practical Guide to Life with FA - a Column by Christina Logan, Columns My Favorite Age Is Now

News Diabetes in FA Patients Well-Controlled Through Individualized Treatment Regimens, Case Series Shows

Columns, Little Victories - a Column by Matthew Lafleur Finding the ‘Why’ and Bearing the ‘How’

A Practical Guide to Life with FA - a Column by Christina Logan, Columns An Introduction to a ‘Practical Guide to Life with FA’

News Eye Movement and Skeletal Abnormalities Common in Friedreich’s Ataxia Patients, Registry Study Finds

Columns, Little Victories - a Column by Matthew Lafleur The Day I Began Tracking My ‘Little Victories’

Columns, Fighting FA - a Column by Frankie Perazzola How a Television Show Changed My Thought Process

News Antioxidants Increase Frataxin Levels in Friedreich’s Ataxia Cells, Study Reports

Columns, Fighting FA - a Column by Frankie Perazzola Birthdays Don’t Have the Same Meaning Anymore, Thanks to FA

News Long-term Treatment with EPI-743 May Prevent FA Progression in Patients, Phase 2 Results Show

News Discovery in Plants May Help Uncover Genetic Mechanism, Potential Therapies for Friedreich’s Ataxia

News Synthetic Molecules Normalize Frataxin Protein Levels in Cells from FA Patients, Study Reports

News PTC Expanding Gene Therapy Portfolio by Buying Agilis Biotherapeutics

News Atrophy Along Spine and in Specific Brain Areas Linked to Clinical Decline in FA Patients, Study Reports

News Omaveloxolone Receives Orphan Drug Designation for FA from European Medicines Agency

News Database of Small RNAs in FA Patients May Help Identify New Biomarkers, Researchers Say

News Novoheart Develops New Models of Cardiac Dysfunction in Friedreich’s Ataxia

News Friedreich’s Ataxia Has Lower Prevalence in South Brazil Compared to Europe, Study Finds

News Friedreich’s Ataxia Patients Have Altered Connectivity Between Brain Regions, Study Shows

Columns, Fighting FA - a Column by Frankie Perazzola It’s OK to Be Honest About Your Emotions

News Cancer Treatment May Be Able to Prevent Heart Problems in Friedreich’s Ataxia, Study Suggests

News In FA Case Study, Baclofen Administered in Spinal Canal Resolved Severe Muscle Spasms

Columns, Fighting FA - a Column by Frankie Perazzola Going Through the Depression Tunnel with Friedreich’s

News US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases

News Gene Therapy Fully Reverses Friedreich’s Ataxia Changes in Mouse Model, Study Shows

News Too-high Levels of Frataxin in FA Can Cause Cellular Stress and Toxicity, Researchers Say

News #ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges

News Chronic Inflammatory State Linked to Friedreich’s Ataxia, Genetic Study Reveals

News Endoplasmic Reticulum Stress Could Be Treatment Target for Friedreich’s Ataxia, Study Suggests

News Breath Testing Shows Promise as Reliable, Simple Method for Diagnosing FA, Other Diseases

News ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

News #ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

News MDA Awards $2.6 Million in Grants to Improve Understanding of Neuromuscular Diseases

News Clinical Management of Adult Siblings with FA Described in Case Report

News Methylene Blue Analogues Improved Mitochondrial Function and Increased Frataxin Levels in Cell Study

News #ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12

News UK Pilot Study to Evaluate Effects of Stem Cell Therapy in Friedreich’s Ataxia Patients

News FA Patients Show Gradual Worsening of Certain Auditory Responses, Study Says

News Retrotope Submits Design of Pivotal Trial for Its Friedreich’s Ataxia Therapy to FDA

News #AAN2018 – FA Patients Show Gradual Decline in Visual Acuity Over Time, Study Finds

Columns, Fighting FA - a Column by Frankie Perazzola Moving Out Despite Friedreich’s Ataxia

News NIH Agency Pioneers Collaborative Research into Rare Diseases

Columns, My Darling Disability - a Column by Kendall Harvey Fight or Flight in FA Patients

News Investigational Friedreich’s Ataxia Therapy RT001 Found to Be Safe, Well-Tolerated in Early Trial

Columns, Fighting FA - a Column by Frankie Perazzola My Experience with Advocacy in Baltimore