Surviving the In-between Moments
On any typical day at my middle school, the closer you were to the bench, the higher your social status. It was a cheaply ... Read more
Updates
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How I Eliminated Fatigue, Part 1: A Bed Fit for a Queen
First in a series. Recently, I implemented two major life changes for the elimination of my fatigue associated with Friedreich’s ataxia. Over the next ... Read more -
How Friedreich’s Ataxia Redefined My Faith
I grew up in a church-going family that was always involved in ministry. We spent at least three days a week at church. I ... Read more -
Depression and Its Symptoms Can Be Severe in Friedreich’s Ataxia Patients, Study Says
Depression can be severe and clinically relevant among patients with Friedreich’s ataxia, and its symptoms are most often expressed as a lack of motivation and negative ... Read more -
Introversion as an Excuse
Sometimes I use my introversion as an excuse. It’s safe and secure; it’s familiar not to expose myself to unfamiliar situations. I find safety and ... Read more
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General Admission Tickets Can Be a Gamble for People with FA
Thanks to Friedreich’s ataxia, I’m never more anxious than in an open crowd in ... -
A Physical Therapist Shares Her Perspective on Working with FA Patients
I have been working with my physical therapist, Kelli, for a year and a ... -
Inhibition of FAST-1 Molecule May Have Therapeutic Potential in Friedreich’s Ataxia, Study Confirms
A naturally produced RNA molecule called FAST-1 can prevent the readout of the FXN gene ... -
Finding Reasons to Stay Alive
Drowsily and with great effort, I hoisted the top half of my body upright ...
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Urinary, Bowel, Sexual Symptoms in FA Lead to Lower Quality of Life, Study Reports
News
Many Friedreich’s ataxia patients experience urinary tract symptoms, bowel problems, and sexual dysfunction, which leads to a lower quality of life, research shows. The study, “Urinary, bowel and sexual symptoms in a cohort of patients with Friedreich’s ataxia,” was ... Read more