Updates

October 18, 2019November 13, 2019
‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview

MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the first approved targeted treatment for Friedreich’s ataxia (FA), succeeded ... Read more
December 6, 2019December 4, 2019
This Year, I Am Thankful for Friedreich’s Ataxia

Every fall, I find myself being thankful for my family and friends and hoping that they are in good health. I am also grateful ... Read more
December 5, 2019December 5, 2019
HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access ... Read more
December 5, 2019December 2, 2019
Navigating the Holidays with Friedreich’s Ataxia

Christmas is always my favorite time of year. The holiday season is a busy time filled with traditions, but in my memories, December is ... Read more
December 5, 2019December 5, 2019
Seelos Therapeutics Gets US Patent Protection Covering Investigational SLS-005 for Neurodegenerative Diseases

Seelos Therapeutics received a Notice of Allowance from the U.S. Patent and Trademark Office (USPTO) covering the parenteral, or non-oral administration of SLS-005 (trehalose) for the treatment of ... Read more
December 4, 2019December 2, 2019
I’m Learning Compassion for My Ataxic Self

It was a good day at physical therapy. I was exhausted from doing leg, arm, and back stretches with the help of my ... Read more

News

‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
October 18, 2019November 13, 2019
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the ...
News

Experts Barry Byrne, Jerry Mendell Lead NORD Webinar on Gene Therapy
December 3, 2019December 3, 2019
A glance around the walls of Barry J. Byrne’s office reveals a lot about ...
Columns, Fighting FA - a Column by Frankie Perazzola

I’m Done with Making Myself Feel Bad
December 2, 2019November 26, 2019
It has always been a challenge for me to remain in the present. I ...
Columns, Little Victories - a Column by Matthew Lafleur

Losing the Puzzle, Winning the Game
November 27, 2019November 22, 2019
I took off the hood that blacked out my vision and covered my face. ...
Columns, No Good Excuse - a Column by Sean Baumstark

I’m (Mostly) Thankful for Friedreich’s Ataxia
November 26, 2019November 22, 2019
I recently wrote about my gratitude for the people I’ve been privileged to meet ...
A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns

The Time Was Right for My Own Wheelchair
November 22, 2019November 20, 2019
“It is time,” I thought to myself. A number of loved ones had presented ...

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‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
October 18, 2019November 13, 2019
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the ...
The Zeego Tales: Letting the Light In
November 20, 2019November 18, 2019
“The Zeego Tales” track the wonders of my life with my service dog, Zeego. ...
I’m Grateful for My FAmily
November 19, 2019November 15, 2019
I Went to Italy and Left My Anxiety at Home
November 18, 2019November 14, 2019
Podcast Sponsored by Reata Pharmaceuticals Focuses on Community Engagement
November 15, 2019November 13, 2019
Rare Disease Film Festival Highlights Patient and Researcher Unity
November 14, 2019

‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
October 18, 2019November 13, 2019
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the ...
I’m Not Finished with Life Yet
November 13, 2019November 13, 2019
I Can’t Let Fear Dictate My Next Steps
November 12, 2019November 8, 2019
Rediscovering My Passion for Baking
November 8, 2019November 6, 2019

‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
October 18, 2019November 13, 2019
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the ...
A Perfect Picture: FA Symposium 2019
November 6, 2019November 4, 2019
Stubbornness Is Dangerously Close to Determination
November 5, 2019November 1, 2019

News

‘Lot of Groundwork’ Behind MOXIe Trial’s Strong Results, Reata Executives Say in Interview
October 18, 2019November 13, 2019
MOXIe, the Phase 2 study of oral omaveloxolone that may prove pivotal to it becoming the ...
A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns

Bucket List Means More When Living with FA
November 1, 2019October 30, 2019
My passion for the hospitality and tourism industry has shaped my bucket list. I ...
News

Reactivating Nrf2 Pathway Restores Nerve Cell Development in FA, Mouse Study Suggests
October 31, 2019October 31, 2019
Reactivativation of the Nrf2 pathway, which is impaired in the nerve cells — or ...
Columns, Little Victories - a Column by Matthew Lafleur

My Little Victories Are Enough for Me
October 30, 2019October 25, 2019
Out of curiosity, I ran an online search of “Kyle Bryant,” one of my ...
Columns, No Good Excuse - a Column by Sean Baumstark

Keeping the Endgame in Mind During Physical Therapy
October 29, 2019October 25, 2019
If I didn’t know that the endgame for physical therapy is to be fully ...
Columns, Fighting FA - a Column by Frankie Perazzola

Do You Put Off Doctors’ Appointments Due to Anxiety?
October 28, 2019October 24, 2019
Scheduling my own doctors’ appointments was one of the biggest indications I was getting ...
A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns

Stay Involved in the FA Community Even When You Can’t Attend an Event
October 25, 2019October 23, 2019
In a previous column, I wrote about rideATAXIA Philadelphia and the 12th Annual Friedreich’s ...
News

Investigational Oral Treatment Leriglitazone Gains Orphan Drug Status for FA
October 24, 2019October 24, 2019
Leriglitazone (MIN-102), an investigational oral treatment by Minoryx Therapeutics, has been granted orphan drug ...
Columns, Little Victories - a Column by Matthew Lafleur

Phantoms and Flowers: Hades, Persephone, and Hope
October 23, 2019October 21, 2019
A friend and I recently had an honest discussion, broaching topics like depression and the ...

October 5, 2017February 20, 2019

Urinary, Bowel, Sexual Symptoms in FA Lead to Lower Quality of Life, Study Reports

News

Many Friedreich’s ataxia patients experience urinary tract symptoms, bowel problems, and sexual dysfunction, which leads to a lower quality of life, research shows. The study, “Urinary, bowel and sexual symptoms in a cohort of patients with Friedreich’s ataxia,” was ... Read more

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