Columns, Little Victories - a Column by Matthew Lafleur Living a Nomad’s Life

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

Columns, No Good Excuse - a Column by Sean Baumstark Excuses Keep Us from Doing the Right Thing

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns As a Person with a Disability, Ali Stroker’s Tony Award Win Inspired Me

News MS Therapy Dimethyl Fumarate May Help Patients with Friedreich’s Ataxia, Study Suggests

Columns, Little Victories - a Column by Matthew Lafleur Playing Catch with Dad Despite My FA’s Progression

Columns, No Good Excuse - a Column by Sean Baumstark Reassessing Is Often Better than Surrendering

Columns, Fighting FA - a Column by Frankie Perazzola Now That I Know Independence Is Possible, I’m Ready for a Roommate

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns A Medication Dosage Adjustment Has Helped to Relieve My Restless Legs

News First Patient Dosed with Leriglitazone in Ongoing Phase 2 FRAMES Trial

Columns, Little Victories - a Column by Matthew Lafleur The Zeego Tales: Graduating Puppy College and Coming Home

Columns, No Good Excuse - a Column by Sean Baumstark Missing Targets with FA: I Don’t Allow Failure to Derail My Life

Candy Shell Life - a Column by Lauryn Smith, Columns We’re Learning to Adjust to Our New Normal

Columns, Fighting FA - a Column by Frankie Perazzola Acute Self-reflection Helps Me Better Understand Others

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Visiting a Historic Farmhouse for a Good Cause

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

News Eye Retina Thickness May be Used as FA Biomarker in Future Trials, Study Says

Columns, Little Victories - a Column by Matthew Lafleur My Cousin Served as My First Wheelchair

Columns, No Good Excuse - a Column by Sean Baumstark As a Patient, My Contributions to Research Are Important

Columns, Little Victories - a Column by Matthew Lafleur The Zeego Tales: Earning the Trust of My Service Dog

News Naturally Occurring Mutation in ISCU2 Protein May Bypass Effects of Frataxin Loss, Early Study Suggests

Columns, No Good Excuse - a Column by Sean Baumstark My Planning Approach Allows Me to Prioritize My Health Needs

Columns, Fighting FA - a Column by Frankie Perazzola As My Abilities Diminish with FA, My Frustration Grows

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Rain Won’t Stop Us from Curing FA!

Columns, My Darling Disability - a Column by Kendall Harvey Wishing Away Friedreich’s Ataxia

News Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

Columns, Little Victories - a Column by Matthew Lafleur Louisiana FA Community Helps Ease Loneliness

News On FA Awareness Day, Friedreich’s Ataxia Research Advocate Is Upbeat

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns On Being a Bridesmaid for a Day

Columns, Little Victories - a Column by Matthew Lafleur Planning for My Unpredictable Future

Columns, No Good Excuse - a Column by Sean Baumstark I Need the Support of Others Now More Than Ever

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Thanks to Planning and Support, My College Alumni Weekend Was a Success

Columns, Little Victories - a Column by Matthew Lafleur Little Victories Really Matter with FA

Columns, No Good Excuse - a Column by Sean Baumstark The Balancing Act of Health and Limitations

Candy Shell Life - a Column by Lauryn Smith, Columns Welcome to a ‘Candy Shell Life’

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns It’s OK to Accept Help When You Need It

News Nonprofit Group Works to Raise Rare Disease Awareness in India

Columns, Little Victories - a Column by Matthew Lafleur Despite the Storm, rideATAXIA Dallas Was Worth It

Columns, No Good Excuse - a Column by Sean Baumstark Learning to Be Satisfied with Our Reasons

Columns, Fighting FA - a Column by Frankie Perazzola It’s Time: I’ve Decided to Go Back to Work

Columns, My Darling Disability - a Column by Kendall Harvey Navigating Curious Kids and Friedreich’s Ataxia

News Oral Glucose Tolerance Test Better at Diagnosing Friedreich Ataxia-Associated Diabetes, Study Suggests

Columns, Little Victories - a Column by Matthew Lafleur Finding Friends, Family, and Vulnerability at rideATAXIA Dallas

Columns, No Good Excuse - a Column by Sean Baumstark Accountability Can Change Everything

Columns, Fighting FA - a Column by Frankie Perazzola To Pursue My Love of Cooking, I’ve Made Some Adjustments with FA

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Celebrate Your Victories, No Matter How Small

News Patients in Short Study Report No Differences Between Idebenone Treatment and Placebo

Columns, Little Victories - a Column by Matthew Lafleur Because Saying ‘No, I Won’t’ Just Isn’t My Style

Columns, No Good Excuse - a Column by Sean Baumstark It Starts with Responsibility

Columns, Fighting FA - a Column by Frankie Perazzola I’m Trying a Different Approach to Fitness

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Thankful to Get Expert FA Care for My Checkup

News StrideBio, Takeda Pair to Develop New Gene Therapies for Friedreich’s Ataxia

Columns, Little Victories - a Column by Matthew Lafleur Waiting to Meet My New Service Dog

Columns, No Good Excuse - a Column by Sean Baumstark Why I Don’t Wait for the Right Time Anymore

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Accepting Wheelchair Use for a Comfortable Day at the Museum

Columns, My Darling Disability - a Column by Kendall Harvey Austin Knows How to Treat People with Disabilities

News Iron-binding Molecules Could Protect FA Patients from UVA Damage to Cells, Study Suggests

Columns, Little Victories - a Column by Matthew Lafleur Consistency in the French Quarter with FA

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Mom’s Care and a Little Planning Made for a Fun St. Paddy’s Eve

News New Platform Enables Collaborative Data Sharing to Develop Therapies for Friedreich’s Ataxia

Columns, Little Victories - a Column by Matthew Lafleur Death, My Constant Companion

Columns, No Good Excuse - a Column by Sean Baumstark Introducing ‘No Good Excuse,’ a New Friedreich’s Ataxia Column

Columns, Fighting FA - a Column by Frankie Perazzola Why I Believe Adaptive Fitness Is Important

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns How I Stay Active in Each Season of the Year

News Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

News Phase 2 Trial of Potential Oral Therapy, MIN-102, Starting in Spain

Columns, Little Victories - a Column by Matthew Lafleur Decompressing from Life’s Complexities on a Lazy Sunday

News Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

Columns, Fighting FA - a Column by Frankie Perazzola Using Both a Walker and a Wheelchair

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns How to Plan a Grassroots FA Event

Columns, My Darling Disability - a Column by Kendall Harvey What Fundraising Means to Me

News NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

Columns, Little Victories - a Column by Matthew Lafleur I’ve Learned to Face My Reality While Hoping for an FA Cure

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Alone We Are Rare, but Together We Are Strong

Columns, My Darling Disability - a Column by Kendall Harvey Becoming Dependent Restored My Independence 

News WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

Columns, Little Victories - a Column by Matthew Lafleur An FAer’s Reflection on Rare Disease Day

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Managing Fatigue in the Workplace

Columns, My Darling Disability - a Column by Kendall Harvey Respecting My Body Despite Friedreich’s Ataxia

News Vienna to Host RARE2019 Meeting on Rare Diseases

News ONEVoice Offers Solutions for Patients with Neuromuscular Disorders

Columns, Little Victories - a Column by Matthew Lafleur I’m Both an FA Patient and a Cajun During Mardi Gras

Columns, Fighting FA - a Column by Frankie Perazzola To the Parents of Children with FA: I Commend You

Columns, My Darling Disability - a Column by Kendall Harvey The Hopes and Risks of Starting a Friedreich’s Ataxia Clinical Trial

News Iron-induced Cell Death May Play Key Role in FA, Study Suggests

News Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

Columns, Little Victories - a Column by Matthew Lafleur The Anchor on My Wheelchair from My Steadfast FA Friend

Columns, Fighting FA - a Column by Frankie Perazzola When in Doubt About Social Media Content, Just Be Honest

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns The Power Behind the FARA Patient Registry

News Neurocrine, Voyager Collaborating on VY-FXN01 Gene Therapy for Friedreich’s Ataxia

Columns, My Darling Disability - a Column by Kendall Harvey When Life Hands You Lemons

Columns, Little Victories - a Column by Matthew Lafleur In the Waiting Room with FA

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns The Cure to Being Burdened by Shopping for Food

News FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases

News Omaveloxolone Safe, Improves Neurological Function in FA Patients, Phase 2 Trial Shows

Columns, Little Victories - a Column by Matthew Lafleur Sometimes FA Makes Me Want to Be Invisible

A Practical Guide to Life with FA - a Column by Christina Cordaro, Columns Don’t Miss the Chance to Share Your FA Story

Columns, My Darling Disability - a Column by Kendall Harvey Similarities in Parenting and Friedreich’s Ataxia

News HIV Treatment Etravirine is a Potential Therapy for Friedreich’s Ataxia, Study Suggests

Columns, Little Victories - a Column by Matthew Lafleur I’m Right Where I’m Supposed to Be