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It’s the time of year when we begin to catch little glimpses of changes coming — a breeze blowing unexpectedly, cool morning air, leaves starting to fall. I’ve learned after my 43 years on this earth that seasons change. Even though the summer days are still long and hot, they…
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One of American poet Robert Frost’s famous quotes is, “In three words I can sum up everything I’ve learned about life: it goes on.” As I approach the ninth anniversary of my Friedreich’s ataxia (FA) diagnosis, I can say I wholeheartedly agree. Amid FA symptom progression, the ongoing nature…
Skin cells of people with Friedreich’s ataxia (FA) show dysregulated levels of fat molecules, including abnormal levels of a class of fats called ceramides that are important for maintaining cellular membranes, a new study shows. Moreover, the researchers noted that impairments in fat molecules known as lipids “predicted the…
I recently returned to an old, bad habit that can take up too much of my time if I’m not careful. I enjoy game nights with friends and family, but those nights are few and far between. So instead, I play Risk on my phone when I have some…
Columnist Kendall Harvey faces many fears while living with FA, but she’s determined to manage them, even if she’s afraid.
Visit the Friedreich’s Ataxia News forums to connect with others in the FA community.
Click the link below to find all the latest news related to Friedreich’s ataxia.
Becoming educated and informed about FA is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your FA journey.
There is no cure for FA yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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