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Even When You Don’t Think You Can, Do It Anyway

Greetings! These summer temperatures are getting close to the triple digits down here in Alabama, and honestly, if it doesn’t involve air conditioning, I’d rather not go. I have a 6-year-old who loves baseball, and I love him, so you’ll find me most evenings at the ball field with a…

Facing an Unknown Future as My FA Symptoms Progress

Since the beginning of my journey with Friedreich’s ataxia (FA), worries about the future have plagued me. Would I have a future? What would it look like? As I learned more about FA, one word stood out: progressive. Everything boiled down to progressing symptoms: My balance and coordination…

FA Gives Me a New Reason to Throw Myself a Pity Party

It’s not uncommon for me to throw myself pity parties. Living with Friedreich’s ataxia (FA) is a constant battle. I have to choose to be strong every moment of every day and to keep fighting for independence, normalcy, safety, and hope. It’s exhausting to maintain the defensive wall that…

My Journey to Accepting My Responsibility With FA

Throughout my journey with Friedreich’s ataxia (FA), I’ve wrestled with people calling me an inspiration. My feelings about it have changed and progressed just as quickly as my disabled body. When I was diagnosed with FA in 2013, my symptoms were relatively mild. The only things I couldn’t do…

How FA Has Affected My Parenting Abilities

Friedreich’s ataxia (FA) has changed so much about who I am. The physical effects have changed how I think, act, feel, and relate. Some of the changes are good, some are bad, and others are just complicated and hard. My parenting abilities have changed in all of the above ways.